by Zachary on Friday, October 7, 2011 at 12:27am
Today, Tracy and I received results back from the FISH test, which suggested Peter does have Trisomy 18. The full genetics test may come back as early as tomorrow and will verify the details. The median life expectancy for Trisomy 18 is 14.5 days. Few live longer than a year, and those that do live longer, do not have the heart and lung complications that Peter has.
We're enjoying each day with him and he seems happy and comfortable. He still has a feeding tube and is on oxygen to help him breathe. The doctors have also given him Lasix to help remove excess fluid from his lungs. There are some surgeries that could help extend his life for a little longer, but would also be strenuous on his body. It is also possible that we could bring him home with hospice care. There are many decisions that Tracy and I continue to pray about to help Peter be as comfortable and healthy as possible.
My parents arrived today and will stay for about 10 days. We were able to take family pictures with Peter, Lucy, Tracy, my parents and I. We're so happy my parents could meet Peter and spend time with us. Pictures will be uploaded shortly on Tracy's facebook page and there will likely be many more to follow! :)
We have had great support from our friends from church and the military. The hospital staff has also been so helpful. Thank you all for your thoughts and prayers. I have certainly felt many prayers ascending to heaven and blessing our lives. Never feel like your prayers have not been answered or have been in vain. Family's are central to our Heavenly Father's plan for His children. Jesus Christ is our Savior and Redeemer and because of him, we will all be resurrected. We look forward to Peter's company when that time comes and we look forward to enjoying all of the blessings our Heavenly Father has in store for our family.